I just fielded a question about whether parents should allow the government (in this case Michigan) to save unused blood spots from newborn babies for future research. I wasn't able to give this mother any advice, but pointed her to these articles:
- http://jacquelineklosek.com/?p=85 – issues in informed consent
- http://articles.baltimoresun.com/2011-04-16/health/bs-hs-baby-blood-samples-20110416_1_samples-screening-program-genetic-disorders - practice raises concern
- http://www.washingtonpost.com/wp-dyn/content/article/2009/06/29/AR2009062903118.html?wprss=rss_technology – samples used for research without parent’s consent
- http://www.wired.com/medtech/genetics/news/2008/05/newborn_screening - fears of abuse
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